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Starting point: a member asks for a list of the best Facebook groups to inform themselves and find support on diagnoses, treatments, and specialized centers.
Opinion emerged: the community shares dozens of names of national and international groups, warns against misinformation, and recommends always checking scientific sources. Several users also report Discord servers as a more private alternative.
Last post date: 2025-05-18
Link: https://www.reddit.com/r/lipedema/comments/1df6li0/lipedema_facebook_groups/ (discussion could continue)