International Scientific Societies dealing with LYMPHEDEMA
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International Lymphoedema Framework (ILF)
One of the most important and accredited international scientific societies dedicated to lymphatic disorders, it promotes research, education, guidelines and collaboration among professionals and patient associations worldwide.
Site: https://www.lympho.org1239 -
Lymphatic Education & Research Network (LE&RN)
International nonprofit organization, founded in 1998, committed to research, education, and advocacy on lymphatic diseases, including lymphedema and lipedema.
Site: https://lymphaticnetwork.org3 -
National Lymphedema Network (NLN)
U.S. network of professionals and patients, promotes education, resources, and guidelines for the management of lymphedema.
Site: https://lymphnet.org3 -
Lymphology Association of North America (LANA)
North American association that promotes certification standards for professionals who treat lymphedema and related conditions.
Site: https://clt-lana.org3 -
British Lymphology Society (BLS)
British scientific society of reference for education, research, and support for patients and professionals in the field of lymphedema and lymphatic disorders.
Site: https://thebls.com23 -
Lymphoedema Support Network (LSN)
British patient organization, offers information, support and advocacy for those living with lymphoedema.
Site: https://lsn.org.uk3 -
Canadian Lymphedema Framework (CLF)
Academic and stakeholder initiative in Canada to promote lymphedema research and education.
Site: https://canadalymph.ca3 -
Australasian Lymphology Association (ALA)
Leading professional society in Australia and New Zealand for lymphedema management, research and education.
Site: https://lymphoedema.org.au3
International societies dealing with LIPEDEMA
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International Lipoedema Association (ILA)
Founded in 2021 by experts from 22 countries, it promotes research, education, and international collaboration to improve the diagnosis and treatment of lipedema.
Site: https://theila.net2511 -
Lipedema World Alliance (LWA)
International association established in 2022 that brings together health professionals, researchers, and patient associations from around the world to promote research, education, and collaboration on lipedema.
Site: https://lipedemaworldalliance.com4610 -
Lipedema UK
UK umbrella organization for information, advocacy, and support for patients and professionals.
Site: https://www.lipoedema.co.uk210 -
American Lipedema Association
U.S. organization dedicated to supporting, raising awareness, and promoting lipedema research.
Site: https://americanlipedemaassociation.org7
Other relevant international companies and networks
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European Society of Lymphology (ESL)
European society promoting research and education on lymphatic disorders, including lymphedema and lipedema.
Site: https://www.eurolymphology.org9 -
National Societies
Many countries have national reference societies, including:-
Lymphverein (Germany)
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Caspian Cancer Care (Iran)
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Medical Lymph Drainage Association of Japan (Japan)
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Nederlandse Vereniging voor Fysiotherapie binnen de Lymfologie en Oncologie (Netherlands)
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Swedish Association of Chronic Oedema (Sweden)
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Lymphbildung (Switzerland)2
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These societies represent the main international reference points for scientific updates, guidelines, education and support for patients and professionals in the field of lymphedema and lipedema.
Citations:
- https://www.italf.org
- https://www.lympho.org/partner-organisations
- https://www.lymphedivas.com/blog/lymphedema-organizations-making-a-difference/
- https://lipedemaitalia.info/lassociazione/
- https://lymphoedemaeducation.com.au/2022/02/the-international-lipoedema-association/
- https://lipedemaworldalliance.com/about-us-2/
- https://americanlipedemaassociation.org
- https://lymphido.it
- https://www.italf.org/en/
- https://www.italf.org/report-i-congresso-mondiale-sul-lipedema/
- https://www.lympho.org/news/details/international-lipoedema-association
- https://www.swissmedical.net/it/cliniche/sant-anna/centri/linfedema-lipedema
- https://www.italf.org/saluto-del-presidente-2/
- https://www.lymphoedema.org
- https://www.grupposandonato.it/centro-lipedema
- https://lipedemaitalia.info/la-nostra-storia/
- https://www.osservatoriomalattierare.it/malattie-rare/linfedema-ereditario/4201-linfedema-il-nostro-ssn-paga-allestero-cio-che-non-rimborsa-in-italia
- https://www.sicpre.it/capitolo-del-linfedema/




