Experiences with diagnosis: how long did you wait?

Starting point: A patient recounts her long wait for a diagnosis of lipedema and asks other members how long it was between her first symptoms and her diagnosis.
Opinions that emerged: Dozens of accounts of multi-year waits, visits to different specialists, and misdiagnoses (obesity or lymphedema). Some members stress the importance of self-information and referral to specialized centers. Several request advice on reliable doctors and centers.
Last comment date: May 29, 2025
Link: LIO Lipedema Italy (discussion could continue)